P 

Getting better every day ..  (even did a half day Skiiing)

 

Although transplant may still be on the cards,  my hope is that I can contunue to improve my test results so I don't need one.

 

Very sleepy (whats new) & maxed out trying to get my self back in shape ..

 

P

 

 

PS .. Thanks for your offers of help .. I can't think of anything I need ,, but you could always donate to the British Liver Trust ..

 

http://www.britishlivertrust.org.uk/content/helping/donate_online.asp 

Hello,

 

Firstly so sorry if you have emailed or text’d and not had a reply .. there are only so many  

Q  ‘How are you ?” 

A   “Fine .. er rubbish ”

.. conversations to be had, but be assured that the messages are massively appreciated. 

 

I don’t recommend a liver biopsy / laparoscopy, but it was not too bad ..  Today I got the results and the diagnosis is NASH (Non-alcoholic steatohepatitis),, in short my liver is not working to process sugars and fats correctly. It’s grossly inflamed (thats whats sore), failing and has build-ups of water and fat globules where the tissues should be.   Not unlike the liver of an alcoholic (I only drink a few glasses a week, and not having drunk since Xmas, they proved that alcohol isn’t the cause), or the obese (my body mass index is normal, not in the overweight range, and far from obese level that would be a risk factor), my liver is simply not doing its job as it should. I may have a degree of insulin resistance, yet this is borderline, subject to further investigation (and thought not in the diabetic range).  Whilst there are indicators such as alcoholism,  etc, I don’t fit in to any of thus usual profiles for NASH, which is not that uncommon as about 15% of hepatitis/ NASH suffers are cause unknown.  (exposure to toxins ? I've even been advised to move out of London!)

 

Bad news – good news – bad news.

 

Bad news – I’m now on the liver transplant list.

 

Good news – The professor still hopes to get my liver working, via a number of options (some experimental).  I have also bizarrely been advised to get a) lots and lots of rest and b) some exercise (the two seem counter intuitive but I’m told that lots of naps with a few bouts of gentle exercise can work very well )  . I’m under strict instruction to avoid all stresses. I’m also taking a special herbal teas (on the advise of a very wise man) and am being strict over diet and am taking all other sensible steps to give myself the best chance of recovery.

 

Bad news – The symptoms that I have been putting up with, look to be with me for a while, (till my liver is fixed or replaced), and its still ‘safer’ for me not to take any pain killers and to avoid alcohol (joy!). So I’m still quite poorly (I’m told you have to be to get onto the list ..), and will be out of circulation for a while more, to put it simply, I'm exausted (known effect of this condition) ..

 

So, sorry in advanced that I am fairly rubbish just now .. .. but am sure that I will be back .. sooner or later !

 

Thanks again for all your emails and texts and offers of help ..  Be sure I'll be in touch just as soon as ..

 

 

Regards Peter.